O.C. Nonprofit Empowers Those With Rare Diseases

Melikian’s only child, Merak Melikian Hatounian, suffers from gastrointestinal stromal tumors (GIST). The rare disease affects about 4,000 to 6,000 new patients in America each year. Hatounian has a particular subset — succinate dehydrogenase-deficient (SDH) GIST — that affects about 150 to 200 people a year in the U.S.

Source : https://www.latimes.com/socal/daily-pilot/entertainment/tn-wknd-et-global-genes-20181206-story.html

O.C. nonprofit empowers those with rare diseases
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